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Maintaining Independence While Still Seeking Help for Parkinson's
Parkinson's may not be a fatal disease but it does have the power to take the wind out of your sails. As the disease progresses, you will find that your mobility is not as good, fine motor skills such as writing and brushing your teeth are harder to accomplish and walking becomes something of a balancing act at times. The greatest fear of most patients with Parkinson's is the loss of independence that the disease eventually brings. However, there are some practical things you can do to stretch out your time of physical independence for as long as possible. Here are some ideas to help you get started with your independence planning:
* Start now by clearing your cabinets and other hard to reach places. Re-arrange your cabinet items so that you most frequently used things are within easy reach, whether by standing or level with wheelchair or scooter accessibility. Invest in a device that helps extend your reach to capture hard to reach items.
* Utilize the latest gadgets and technology for items you use every day. Choose electric razors over manual ones; buy pre-made dental floss applicators over the kind you tear off yourself. Choose ergonomic hairbrushes, chairs, keyboards and furniture that will help you manipulate easier.
* Invest a little money in housekeeping services as well as lawn services. If you have trouble cooking, look into Meals on Wheels program or hire someone to prepare meals for you.
* Look into physical therapy and other exercise options that keep you moving and help with flexibility, muscle tone and more.
* Have ramps built for your home so you do not have to navigate the steps and consider a chair-lift if you have a second story home. Do not be bashful about using the motorized grocery cart when shopping or even using a walker as needed.
There are many more suggestions that can help your life be a bit easier as Parkinson's disease progresses. You might want to consider working with consultant and have them examine your home for potential dangers that might hinder your movements and cause injury.
Many family and friends are well-meaning and may try to do things for you that you believe you can still do for yourself, albeit a bit slower. Be up front and honest with them and let them know what you can still do and what you want to do. At the same time, do not begrudge them their thoughtfulness either. Maintain a healthy and positive attitude toward your Parkinson's disease as it progresses.
It is also important that you know when to concede on certain issues and get help. There is a difference between independence and stubborn hard-headedness. Not only do you have to think about your own safety but also others as well. If there is any task like driving or cooking that could possibly put you or others in danger, refrain from doing it and ask for help. You are not giving up all your independence by doing so. The bottom line is to be realistic not only about your disease but also your own capabilities.





